What is Sickle Cell Disease?

Sickle cell disease (SCD) is a hereditary blood disorder that affects red blood cells, causing them to take on a rigid, sickle-like shape. These cells can block blood flow, leading to severe pain, infections, organ damage, and other serious complications. SCD most commonly affects individuals of African, Hispanic, Middle Eastern, and Indian descent.

How ENJAH-SCF is Driving Awareness

At ENJAH-SCF, our mission is rooted in education, advocacy, and empowerment. We’re working to transform the narrative around sickle cell through impactful programs:

Community Workshops & School Presentations

We host free informational sessions for students, teachers, and local communities to encourage early detection and empathy.

Health Fairs & Public Events

Our team organizes events that promote awareness, offer free screenings, and distribute vital educational materials.

Social Media Campaigns & Toolkits

We use digital platforms to reach global audiences, share real stories, and provide downloadable resources for advocates.

Why Awareness Matters

Despite being one of the most common genetic disorders worldwide, sickle cell disease receives significantly less attention and funding compared to other conditions. Awareness helps to:

Break the stigma and misinformation surrounding SCD
Promote early diagnosis and access to care
Inspire public support and legislative action
Provide emotional support to affected individuals and families

Quick Facts About SCD

Understanding the Basics Saves Lives

Raising awareness begins with knowledge. These key facts help clarify what SCD is—and isn’t—so we can eliminate myths and promote early action.

Inherited, Not Contagious
SCD is passed genetically from parents to children and cannot be caught or transmitted.
Starts Early in Life
Symptoms can begin in infancy and may include pain, fatigue, and risk of infection.

No Universal Cure

While treatments exist, there's currently no guaranteed cure—though bone marrow transplants offer hope.

Life With SCD Can Be Fulfilling

With the right care, education, and support, individuals with sickle cell disease can lead long, meaningful lives.

Education Empowers

Understanding the condition helps reduce stigma and builds stronger support systems in schools, families, and workplaces.

Join the Movement

At ENJAH-SCF, we believe that knowledge saves lives. By raising awareness, we give power back to families, patients, and communities. Let’s change the future of sickle cell—together.

Contact Us to host a workshop or request flyers: info@enjah-scf.org